Showing posts with label autism awareness. Show all posts
Showing posts with label autism awareness. Show all posts

Monday, 13 December 2021

Sending out an SOS with a Sprinkle of Seasonal Wishes

 Trigger Warning:

An analogy of the UK's national mental health crisis & 

consequences of unmet mental health needs.

Ends with options for seeking urgent help.


Image by Katrin Korfmann via Pinterest


As an “inclusive & tolerant” society,

we were appalled recently by scenes of officials seemingly standing by as desperate children & adults risked, & ultimately lost, their precious lives boarding an insubstantial boat, heading into treacherous seas seeking safety.

 

Yet we remain indifferent, maybe ambivalent,

to a similar scenario in our own mental health system.

 

Too many children & adults, struggling to fit in 

& excluded from their “inclusive & tolerant” society, find themselves fighting for their precious lives, metaphorically flailing in treacherous seas seeking safety.   

  

Rescue boats advertise their presence, 

& caring practitioners point the way, but the life lines are overloaded & seemingly inaccessible for many.  

 

Some officials glance, then sail superiorly by, 

muttering things like “you’ll grow out of it” or “get a job” or “in my opinion the risk of you actually drowning is low so it’s not worth me acting”.

 

Some officials stop to reprimand those seeking safety, pointing out the seriously ill people on land needing their help, or limiting their help to those already below the surface.

 

Other officials say there’s no space on the boats 

& the struggling children & adults must wait in the treacherous seas until space becomes available, which will be years, throwing in a selection of bouyancy aids to try meanwhile.

 

Then boats appear on the horizon promising space 

but, having been “too well” for earlier boats, you’re now deemed “too unwell” for these boats, or you’re denied access because you’re waiting in line for other distant boats.

 

Some tell of remote rocks you may rest on 

but only at certain times of the day, so time your desperation accordingly.

 

Some offer boats in glass bottles, 

for those with the means of breaking through glass.

 

 And for those with autistic sick brains 

the obstacles to safety swell.  

 

Then, some officials say they can’t help 

because they’ve only been trained to save people with non-autistic sick brains.

 

Other officials might tell you not to even try 

getting on their boats because they’re not suitable for people with autistic brains, failing to notice, in that moment, any boat is better than no boat & failing to acknowledge that people with autistic brains have likely been in the water much, much longer (their flailing in treacherous seas normalised) & autistic brains are much, much more likely to succumb to it’s depths*. 

 

The trauma of flailing in treacherous seas, 

unaided for so long, numbs the autistic brain & silences autistic screams; & these desperate souls are passed by for those whose needs are deemed greater because they can still scream.

 

It’s as if autistic souls were given life vests 

but without a whistle for drawing attention.


Without a whistle, & with screaming silenced 

by catatonia misinterpreted as a state of relative calm by officials, we flail, unheard & untreated, drowning unseen*.

 

To those in boats (those boats we're all supposed to be in, even if we're in different boats) I say:

 

 Look again at the choppy waters around the boats 

(those on bigger boats, further from the sea’s surface, may need to look harder): what looks like breaking waves may actually be the desperate waves of struggling, broken children & adults seeking safety whilst officials stand by.

 

Appalled?

 

This advent, these are my seasonal wishes:

 

To see free ships come sailing in, 

on Christmas Day, on Christmas Day, 

To see free ships come sailing in,

breaking through the dark.

 

To see free ships come sailing in, 

And all the bells on earth to ring,

And all the angels in heaven to sing, 

On Christmas Day, on Christmas Day.

 

I wish for sufficient & suitable spaces 

on substantial boats for desperate souls when travel across treacherous seas is unavoidable to be safe;

 

I wish officials on shore would intervene earlier 

to help the struggling children & adults feel safe on land, minimising displacement & reducing the volume of desperate souls in treacherous seas.

 

I wish society would flex & evolve 

to better include struggling children & adults so they feel safe where they are, anchored to solid ground, thriving autonomously, Captains of their own ships, officials standing by & saluting rightfully.

 

I wish. I wish. I wish.

 

Save Our (Desperate) Souls

 

~o0o~

 

* Autistic adults who do not have a learning disability are 9 times more likely to die from suicide; autistic children are 28 times more likely to think about or attempt suicide (source autistica.org).

 

~o0o~ 


An Aside: 

 

For as long as I can remember, 

even in calm waters or back on land, 

I’ve always feared death by drowning.  I heard it said once that the way you most fear dying is the way you will die.  I’ve no idea how true this is, nor have I dwelt overly on such a harbinger of gloom, but recently I'm forced to acknowledge I often feel I'm drowning metaphorically, if not literally.  Although, I don't intend to!


Image by Sarah Lee on flickr via Pinterest


~o0o~

 

Unconvinced of the crisis?  

Watch “Dr Alex: Our Young Mental Health Crisis” filmed for BBC Children in Need 2021

 

Struggling yourself?  

If you need help now there are options (for full list of options offering immediate help in the UK visit NHS.uk): 

 

"To talk, any time of day or night, free listening services offer confidential support from trained volunteers. You can talk about anything that's troubling you, no matter how difficult:


Call 116 123 to talk to Samaritans

or email jo@samaritans.org for a reply within 24 hours


Text "SHOUT" to 85258 to contact the Shout Crisis Text Line

or text "YM" if you're under 19

 

If you're under 19, you can also call 0800 1111 to talk to Childline. The number will not appear on a phone bill."

 

Reach out - you are not alone x


Image via ZsaZsaBellagio.tumblr.com on Pinterest

Origin Unknown



 

 

Saturday, 27 February 2021

We're Going on a School Hunt


Picture by me

My 
lived autistic-family-experience inspired re-imagining 
of the popular children's book "We're Going on a Bear Hunt
by Michael Rosen & Helen Oxenbury.

This story is written for
all the often-neurodiverse children 
failed by the current education & EHCP systems, acknowledging that, out there, in the wild forests & woods of the current educational eco-system (or edu-system), are the good, 
the very good, the very very good, 
the not so good & the terrible.  

Having experienced all these,
we are very thankful for all versions of good.  
I hope you know who you are & I hope others care enough to ask how you do it.

Image via Pinterest

We're Going on a School Hunt

We're going on a school hunt.
We're going to find a good one.
What a beautiful day!

We’re not scared.

 

Uh-uh! Uniform!

Stiff itchy uniform.

We can’t go over it.

We can’t go under it.

 

Oh no!

We’ve got to go through it!

 

Scratch pull!

Scratch pull!

Scratch pull!


Image via Pinterest by Darren Stone on flickr



We’re going on a school hunt.

We’re going to find a good one.

What a beautiful day!

We’re a bit scared.

 

Uh-uh! Traffic!

Never ending traffic.

We can’t go over it.

We can’t go under it.

 

Oh no!

We’ve got to go through it!

 

Rumble beep!

Rumble beep!

Rumble beep!

 

Image via Pinterest, The Wall Street Journal


 

We’re going on a school hunt.

We’re going to find a good one.

What a beautiful day!

We’re scared.

 

Uh-uh! Grown ups!

Noisy random grown ups.

We can’t go over them.

We can’t go under them.

 

Oh no!

We’ve got to go through them!

 

Chitty chatty!

Chitty chatty!

Chitty chatty!

 

Image via Pinterest

Image via Pinterest by Resales Botijero on flickr


We’re going on a school hunt.

We’re going to find a good one.

What a beautiful day!

We’re very scared.

 

Uh-uh! Gates!

Narrow metal gates.

We can’t go over them.

We can’t go under them.

 

Oh no!

We’ve got to go through them!

 

Clang squeeze bump!

Clang squeeze bump!

Clang squeeze bump!

 

Image via Pinterest



We’re going on a school hunt.

We’re going to find a good one.

What a beautiful day!

We’re very, very scared.

 

Uh-uh! Children!

Lots & lots of children.

We can’t go over them.

We can’t go under them.

 

Oh no!

We’ve got to go through them!

 

Shriek laugh scream!

Shriek laugh scream!

Shriek laugh scream!


Image via Pinterest

 

Image via Pinterest by Apartment Therapy 



We’re going on a school hunt.

We’re going to find a good one.

What a beautiful day!

We’re panic stricken.

 

Uh-uh! A classroom!

A chaotic, crowded classroom.

We can’t go over it.

We can’t go under it.

 

Oh no!

We’ve got to go through it!

 

Hands on ears!

Duck & weave!

Run run run!


Image via Pinterest, Joy the Baker

Image via Pinterest

 

WHAT’S THAT?


Image via Pinterest, Amanda Jane Jones on Instagram

 

One size fits all round peg sausage factory!

Too many flickering fluorescents!

No-one explaining what when or why!

 

IT’S A SCHOOL!!!!

 

Image via Pinterest


Quick! 

Back through the classroom! 

Hands on ears! Duck & weave! Run run run! 

Back through the children! 

Shriek laugh scream! Shriek laugh scream! Shriek laugh scream!

Back through the gates! 

Clang squeeze bump! Clang squeeze bump! Clang squeeze bump!

Back through the grown ups! 

Chitty chatty! Chitty chatty! Chitty chatty!

Back through the traffic! 

Rumble beep! Rumble beep! Rumble beep!

Back through the uniform! 

Scratch pull! Scratch pull! Scratch pull!

 

Get to our front door.

Open the door.

Up the stairs.

 

Oh no!

We forgot to shut the door.

Back downstairs & over the uniform.

 

Shut the door. 

Over the uniform & back upstairs.

Into the bedroom.

 

Into bed.

Under the covers with our plushies.


Image via Pinterest 


WE’RE NOT GOING ON A SCHOOL HUNT AGAIN.


Except the law says we have to so we do .... 

 

We’re going on another school hunt.

We’re going to find a special one.

What a hopeful day!

We’re not sure.

We’re segregated.

 

Uh-uh! It’s the same!

 

We’re going on another school hunt.

We’re going to find a different one.

What a difficult day!

We’re not wanted.

We’re depressed.

 

We’re going on another school hunt.

Will we ever find the right one?

What a dark day!

We’re not well.

 

Image via Pinterest


We’re lost isolated broken & alone.

 

Uh-uh! PTSD!

Painful life threatening PTSD.

We can’t go over it.

We can’t go under it.

 

Oh no! 

We’ve got to go through it!

 

WE CAN’T GO ON A SCHOOL HUNT AGAIN.

 

 The End.


S.L.


o0o


To quote Alan E Beck:


"You can't do the Bloom stuff 

until you've done the Maslow stuff."



Image via Pinterest


 The End End